Welcome

Welcome to the web site of the International Pediatric Multiple Sclerosis Study Group (IPMSSG).

The International Pediatric Multiple Sclerosis Study Group is a global network of adult and pediatric neurologists, basic scientists, clinicians, representatives of MS societies and other relevant professional organisations, whose unifying vision is to optimise worldwide healthcare, education and research in pediatric multiple sclerosis and other acquired inflammatory demyelinating disorders of the central nervous system.

 

Our Mission is to improve the care of children with multiple sclerosis and acquired demyelinating diseases worldwide, promoting clinical initiatives, education and research.

 

On the website there is information about multiple sclerosis and other acquired inflammatory demyelinating disorders of the central nervous system, research, educational events and other activities.

 

News and Announcements

2018 Pre-ECTRIMS IPMSSG members meeting

IPMSSG members recently attended a Pre-ECTRIMS Meeting on Pediatric MS in Berlin.

FDA approves Gilenya for children and teens with MS:

https://www.fda.gov/newsevents/Newsroom/PressAnnouncements/ucm607501.htm

May 2018: FDA approves Gilenya for pediatric MS patients 10 years or older. Gilenya is the first FDA approved therapy for pediatric MS.

For more information, visit the Gilenya website.

Many thanks to all the families and IPMSSG members who contributed to this historic milestone!

Breakthrough Designation for Pediatric MS

On December 18, 2017, the FDA granted Gilenya (fingolimod) breakthrough designation for pediatric MS based on the PARADIGMS results. See these links for more details: 

https://www.cnbc.com/2017/12/18/pr-newswire-novartis-multiple-sclerosis-therapy-fingolimod-granted-fda-breakthrough-therapy-designation-for-pediatric-ms.html

http://www.mdmag.com/medical-news/fda-grants-breakthrough-designation-to-fingolimod-gilenya-novartis 

Many thanks to all IPMSSG members who contributed to this historic result!

 

Neurology Publications on Pediatric MS

We are very pleased to announce the on-line publication of an IPMSSG Neurology supplement with 16 articles focused on topics in pediatric MS and related demyelinating disorders. This represents an effort 66 authors from 16 countries, making this a truly global effort. See attached table of contents and link below to articles, which are all FREE. 

http://www.neurology.org/content/87/9_Supplement_2

Many, many thanks all the funders listed below for making this publication possible:

Publication of this supplement was supported by:

 

We believe that this work represents an important advance for the care of children with MS and demyelinating disorders worldwide.